Day 5 June 5, 2009

I’ve been so groggy; I didn’t even feel like writing until now. It’s 9:45am and I am hooked up to my last dose of Campath. Andy stuck me once and everything went fine.

I am exceedingly groggy due to the sleep meds from last night. Took it at 9pm. The nurses were adamant about making sure I did not take the meds until I was actually in bed, ready to sleep. So I got ready for bed, took the pill and got ready to sleep. Then my phone rings. Jason had a show last night, and was wondering if there was a speaker in the van, as he seemed to have lost one. Not sure if he found it, but I know it wasn’t in my van. Weird that a large speaker can disappear like that. Hopefully he found it.

After the phone call, I fell asleep, and didn’t wake until right before my alarm went off at 7am. Didn’t want to get up though. I felt like I could still sleep. Took a long time for me to get up. Went to breakfast, barely coherent, and noticed no yummy Indian food. L

I had scrambled eggs with Tabasco sauce (a little bit only) and potatoes. Nice and filling, but nothing spectacular. Still feeling half asleep, I wandered back to my room, slowly got ready and came here. I am still not sure I’m fully awake. Struggling a bit with mental facility. I will be napping.

I napped the whole time I was at the clinic. Andy stuck me once, they hooked me up to the IV, turned off the lights and I was out. The time went quick, due to sleeping, and before I knew it, I was done. Done, with my first year of meds.

It was anti-climactic.

Cathy came in around four and we talked about expectations and schedules. We will be talking every 2 weeks, and every four weeks I will be getting blood drawn. Luckily, there is a group that can come to Rockford and draw my blood from my home. Every three months, I’ll actually have to drive down to Northbrook for blood tests, but that’s not that bad.

Cathy gave me a list of my visits for the next five years. All listed out to the year 2013. When looking at the dates all written out, it makes me feel pretty good, because it shows that the drug company and the doctors and nurses in charge of this study want only to take care of the patients who have volunteered to test out this drug. I am very glad this is happening.

I’m in my motel room now, thinking on the past few days, wondering what the next few years are going to bring for me. I hope greatly that this treatment works for me as well as it has other MS patients.

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